Forthcoming Keynotes & Presentations
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Interpreting Patient-Reported Outcome measures: Where next? MH-PSYCHIATRY 2022. October 25-26 Dubai UAE
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Patient-reported outcome measures (PROMs) are valued in healthcare evaluation for bringing patient perspectives forward and enabling patient-centered care. The range of evidence permitted by PROMs to measure patients’ quality of life narrowly denies subjective experience. This neglect is rooted in the epistemic assumptions that ground PROMs, and the tension between the standardization (the task of measurement) and the individual and unique circumstances of patients. Following a brief introduction to the development of PROMs, to counter the resulting methodological shortcomings, this presentation proposes a hermeneutical approach to the interpretation of patient-reported outcomes. The presentation will conclude with a number of methodological considerations e.g. researcher stance, research objectives, data analysis, to ensure the data collected is of the highest quality, central to the lives of people, and provides new insights into their quality of life and health status.
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Are Patient-Reported Outcome Measures Successful in Telling the Full Story? Future Nursing 2022. International Webinar on Nursing and Women’s Health Care. November 14-15, 2022. Dubai, UAE
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Patient-Reported Outcome Measures (PROMs) play a central role in clinical research and patient care driven most likely by the need to provide more patient-centered care. Despite their use in the nursing context, there is scant discussion on the theory underpinning their development and use and whether they provide a true picture of the individual’s experience of their health status and/or quality of life. When completing a PROM can we say we are providing the patient with a voice and treating them as individuals who create and follow their own individual life plans? In this presentation, I propose an alternative approach and argue that the numeric score, derived from the PROM and representing an individual’s health status or health-related quality of life, is limited due to their illness narrative being lost along the way.